On the one hand, I'm one of those people who think it is a little ridiculous that we have a "month" for virtually everything. I mean, awareness, when it needs to be raised, should happen all the time. And the things we appreciate, we should always appreciate; not just for a month or a day each year, but all year long (yeah, I know, Hallmark loves me...). Honestly, do we really need a "National Pet Month" (it's May, if you are wondering) or a "Dance Appreciation Month" (July)?
But then I think about the significant things that can happen when passionate, like-minded individuals come together for a common purpose, and I can see the value in having a dedicated day or even a month. It can renew our sense of enthusiasm, help us to raise funds along with awareness and provide opportunities to both teach and learn. It's why I continue to support Jewish Disability Awareness and Inclusion Month each February, and it's why I am writing this post in honor of Autism Awareness Month, which many (including me) prefer to call Autism Acceptance Month. To be even more specific, I am writing this post in honor of a couple of amazing people.
A few
years ago I had the good fortune to learn about Sam Gelfand, who was then about
to become bar mitzvah, as he had developed a unique Mitzvah Project (Many
synagogues ask their b'nei mitzvah to develop a project to demonstrate
their commitment to performing mitzvot (commandments) in addition to preparing
to read Torah). Often, these projects become simple collections of money or
stuff, to be donated to great causes. But Sam was doing something
significant. You see, Sam has Asperger's Syndrome, and he decided that it
was important to teach others what it was like to live with Asperger's, in the
hope that people could learn to be more tolerant of others.
What
began as a B'nei Mitzvah Project soon mushroomed into a multi-state speaking
tour! And now, years later, Sam is still presenting
his story to audiences of all ages. His message is delivered with passion and
humor, engaging those who listen in a way that is real and current. He
speaks of the years that he was bullied, of the many obstacles he has overcome
and of his plans for the future, all while reinforcing his message of tolerance
and acceptance of others.
But Sam
is not the whole story. While he is amazing in his own right, the minute
you meet his mother, Allison Craigie, you realize that she is they key to Sam's
success. She is the epitome of what we hope we can each be as a parent;
supportive, committed, determined. In Helping
Parents Find Their Way, I reference those parents who become strong
advocates for their children. Allison is the true embodiment of this vision.
I am honored to have gotten to know her and to call her my friend.
And I am really proud to share that she is featured in the book
"Chicken Soup for the Soul: Raising Kids on the Spectrum".
If you have the opportunity,
bring Sam in to speak to your community, Jewish or secular. And while
he's there, ask Allison to lead a conversation with, or a workshop for,
parents.
Be sure you never miss a post from Removing the Stumbling Block:
Beautiful! We must open our eyes to the truth that we are offspring of God- made in His image- we must treat each one with the respect we so desperately want and realize we all have "special needs" and we all have struggles in this life. Great article!
ReplyDeleteHi! This article was great! Do you know how I might get in touch with Allison or Sam? I am involved in a documentary called Autism in Love and as we are beginning in the promotion stage of our project, I would love to be able to talk to someone who is a part of an under represented community who might be interested in our work!!
ReplyDeleteHi Triya. You can reach Allison via email at allibc123@gmail.com. Thanks!
DeleteThank you so much!
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